19th Oct 2017 11:46:14 PM

The Charities | The Children | Dorah Mokoena | Health | Schools / Training | Community | Regional Reports | UMashesha
Home
Ado Balombo Bambula
Agnes Wabiwa
Amanda Simanga
Amina Mahamat
Amukelani Dube
Andani Mphaphuli
Anele Nyongwana
Babalwa Debele
Babalwa Mfengu
Baby Babongile
Bafana Nzima
Basheeba Worlotoe
Benoni
Boipelo Mosegedi
Bongani Madlala
Bongani Phakati
Bonginkosi
Brendan
Busisiwe C
Caroline Gichuki
Chris M
Clara
Deon Slabbert
Doreen
Emmanuel Lawal
Esihle
Evelyn Minto Essono's
Feleng
Franklin
Fursy Mugobe
Gabriel
Gabriel C
Gamuchirai Vanessa Gohodza
Gloria
Gontise Mogotsi
Habiba
Hatendi Simbe
Helen Matondo
Hlumelo Dondashe
Irene Peta
Jabulani Malungane
Jacques Abrahams
Janine Barends
Jose Mvula
Kagiso Maphoso
Kagiso Mathebula
Kagiso Mphuti
Karabo Thebedi
Kedibone
Kenyan
Kezia Fern Samuel
Kjetil Sandivk Havnen
Koketso Sekuru
Lathlehele
Lee Branco
Liane Grond
Lida Basson
Loide
Londeka Ngidi
Maje
Mbali
Michelle Ecape
Michelle Mthenjwa
Mimi
Mitta
Mlungisi
Mohau Qumpula
Mpho Maja
Munashe
Mungo Nete
Musa Zwane
Musiwa
Neliswe Radebe
Nelson Tsabalala
Nkosi Ncube
Nkululeko
Nkululeko Jnr
Nomthandazo Shongwe
Nosihle
Nsizwa Vilakazi
Nthabiseng
Nyakallo
Oscar Mlondolozi Hadebe
Perlucia
Phillip Lesingaran
Phindile
Piet Moloja
Rachid
Reagan
Rien ne Dit
Rolivhuwa Matodzi
Rose Wambua
Rumbi
Saloma Aphanye
Sameh Chiboub
Samkelo Somi
Samukelo Radebe
Seetsa Mosoma
Seif
Seiso
Selamawit
Shaun
Shaun Hart
Shirley Seqobane
Sicelo
Simamkele
Sithembiso Hlatshwayo
SiyaAndile
Siyabonga Morwasetla
Siyabonga Nokumbi
Siyamthanda
Sizwe
Steven Marakeng Mpyana
Sthabile
Sunday Mukaza
Tapera Jani
Tavonga
Tembakazi
Tendani Yaka
Thando
Thapelo
Thomas
Thulani Nhleko
Tshepiso Maimela
Tshepiso Sekuru
Vhahangwele Matodz
Violet Chibvura
Vivian
Vusi Mathibela
William B
Xavier
Yassine Ben Ali
Zanele Jeza
Zianda Ndlovu
Zipho Zwane
Nkosi Ncube



















Nkosi blows straws, balloons and bubbles for his speech therapy.



Nkosi on 23rd May 2011, still with stitches in his left upper eyelid, after his ectropion scar release with Dr Amy Jenkin at Charlotte Maxeke Johannesburg Academic Hospital.
He still needs a lot more surgery, particularly to eyelids, face, chest, axilla. He still needs his ARV regime changed. He still needs pressure garments for chest and face. He still needs speech therapy as he understands well but does not remotely have the spoken vocabulary of 450 words that one would expect at his age.
He is attending the Johannesburg School for Blind, Low Vision and Multiple Disability Children where he is learning to scribble happily with large pencils like a two-and-a-half year old would.



Nkosimayibongwe N was born 21st November 2008 in the Bulawayo area of Zimbabwe.
He was burned 10th August 2010.
His first name means "Thank you, God."
But one wonders, thank you for what?

Thank you for life. And a happy healthy older half-sister. And bright parents each with tertiary education.
And then...?
For giving his mother Nevirapine when he was born to prevent mother to child transmission of HIV.
And then...?
For her breastfeeding her child and ensuring that he is now HIV positive.

It was with this shouting cacophony of emotions that we accepted a new toddler at Children of Fire.
It is tough enough with declining surgical standards in South Africa and the recession still biting worldwide, to try to get any indigent child surgery.
But to then persuade doctors that this little boy with severe ectropion scarring, and a severe left axilla contracture, and bad chest burns, and facial keloids, should have the five, or ten, or 15 operations that he needs, will be so hard.

Under the age of six years old, he can notionally get surgery free of charge in South Africa. But they will most likely find ways not to help him because his "prognosis is poor".
We talked by email for a long time. We had the pictures, knew the burns.
But only when his parent was about to leave, did he mention the ARV regime that has to be taken every 12 hours for the rest of Nkosi's little life.

On a quick checkup at virology in Charlotte Maxeke Hospital, they said: "the parents blackmailed you by not telling you in advance."
And so they did.

But Nkosi is here now, settling in, making friends, getting potty training, learning to scribble on paper and playing with toy cars and music boxes. It's April 2011 and the battle begins.



Nkosi Ncube is a complex little boy who allegedly had three fits in his young life.
He supposedly fell into a rural cooking fire outside his grandmother's home and the parents assumed that he had a fit when it happened.
He was born HIV positive and unfortunately put on 12 hourly antiretroviral medicine from the outset, so he will have to remain on them for the rest of his life.
He arrived to stay at Children of Fire on Thursday 14th April 2011 and was scheduled to meet leading ophthalmic surgeon Chris van Niekerk on the following Monday, because of the severe ectropion scarring on his left eye in particular.
He needs axilla (armpit) surgery, hand surgery and most urgently, facial surgery, especially to the eyelids of both eyes as well as the keloids around his mouth. Nose surgery would definitely wait until he is older.





book marktell a friendprint page
This material is Copyright The Dorah Mokoena Charitable Trust and/or Children of Fire , 1998-2017.
Distribution or re-transmission of this material, excluding the Schools' Guide, is expressly forbidden without prior permission of the Trust.
For further information, email firechildren@icon.co.za